Another urology check up

A little over a week ago both of the kids had another renal ultrasound. This is about the fourth visit that we have had the same tech so it is nice to see a familiar face.

Sara went first. Typical white spots all over from her kidney stones that are still in both kidneys. It looked like there were 2 in a new place but ultrasounds are not good at showing a clear picture of the stones, as opposed to an x-ray. Today we were looking for any major changes and making sure her kidneys still look healthy. The funniest part was when she had to provide a urine sample in a specimen cup. Sometimes she has a hard time and I sing a little song to make her laugh. This time she had no problem going...and going...and going. Let's just say the cup runneth over!

Both the kids got a little present from the tech, which they loved! Perfect travel companions for our road trip to Iowa for Christmas later that day. Meet "Nuts" the squirrel and "Sammy" the bear.

I was fully expecting Dr. Rhee to say this was Adam's last appointment and he was released from his care. When Adam had his surgery a year ago, the doctor told us quarterly ultrasound follow ups for a year to make sure the blockage did not return and then he should be released. After the first quarterly ultrasound post-surgery, he had healed so much that he cancelled the next one and said don't return for 6 months! Well, when will I learn to throw any expectations I have out the window? Adam's ultrasound showed no change from the previous one. There was still dilation in Adam's right kidney, which is similar to an inflammation or irritation. It's possible that it won't completely go away but the doctor isn't ready to stop following up yet.

As for Sara, she also had no change, which is good. No worse. I will take it. Dr. Rhee did discuss plans for next steps this summer. He would like to do another ultrasound in 6 months, another VCUG, and then surgery. The ultrasound and VCUG can be done in the same day. I was not real happy to hear that he wanted to do another VCUG and pushed back pretty hard. He told me 6 months ago it was highly unlikely that Sara's renal reflux would correct itself at this point. If that is the case why do we need to put her thru another uncomfortable procedure? He agreed that it is very unlikely it will correct itself. But on the low chance that it does, he does not want to waste an hour of surgical time going in the direction toward her bladder if he doesn't have to. He would also like to limit her surgery to 3 hours because anything more than that is too hard on a child to recover from anesthesia. So the plan would be ultrasound and VCUG in June, surgery in July--1 hour repairing her renal reflux on the right and 2 hours of work trying to clear the rest of the kidney stones on the right, and removal of her stent in August. It will be the same type of robotic surgery she had in Boston. A busy summer in preparation for kindergarten. It is possible that once inside, the doctor may find that her scarring is too severe to allow access to the kidneys. If that is the case, he will stop the surgery and have to figure out another option.

The absolute best news we learned was that we can change her daily antibiotics to a pill. She sprinkled the granules in some chocolate pudding and she gave it a big thumbs up, telling me "We can do this every day now, Mom!" Why is that so exciting? The liquid form of her meds costs $300 per month. The pill is $30 per month. Thanks, God!

Lots of emotions that I am processing this time of year as I look back on last year. One year ago from this doctor visit, we were in Boston having pre-surgery appointments for Sara. January and February last year were so exhausting on every level with 7 surgical procedures for the kids, as well as surgery for my mom on her broken arm, and surgery for Shannon's dad on his heart.

The biggest lesson I learned in 2013 was to not ask why. Whether or not I had an answer to everything that was happening would not change the outcome, and it certainly wouldn't change my faith.

Oh Christmas Tree...

I started taking down the Christmas tree tonight so it seems only appropriate to blog about when we got the tree. We were actually pretty on the ball this year and made our outing the first weekend in December. Of course it had to be barely above zero that day. We could hardly take standing there as the Red Barn helper showed us options. We knew we wanted a Canaan as it has become our favorite species for the past few years--full branches and soft, shorter needles. Shorter? Tall? Fat? Skinny? I wanted a fat one. The kids voted for skinny. 7 feet? 8 feet? 8 1/2 feet--oh come on, dad, we have a 9 foot ceiling in the living room. It will fit.

Well, after we trimmed a little off the top it fit! I'm pretty sure the tag was not marked correctly!

Thankfully Adam is a great helper, especially when it comes to big projects. Both the kids really enjoyed decorating the tree, too.

Note: there was absolutely no way Adam was going to stand on Shannon's shoulders to put ornaments at the top! Most people are shocked to learn that Sara is the daredevil of the pair but she was enthusiastic when he hoisted her up there.

I don't know what it is about with the Santa hats but that was the first thing the kids asked for when we brought boxes up from the basement. They just couldn't wait to put them on!

Even the cat joined in the fun! Well, kind of...

I love having a real tree. It's one of my favorite things about Christmas. And the kids love it, too. Every morning they would wake up and ask me to turn the lights on right away. Adam would tell me "Merry Christmas, Mom!" Every day. And then we would turn off the living room lights at night and enjoy the tree one last time before bed. One night I found Adam sitting on the couch by himself in front of the tree and when I sat next to him, he said "Mom, it's beautiful."

The wonder of the season can be found in the eyes of a child.

Ver-Mini

Last week we bought a "new to us" Vermeer mini skid steer at the landscaping company I work for (Designer Concepts Landscape Architecture). Shannon has deemed it the Ver-Mini! My boss, Ryan, came over to help us push debris further into our ravine. The kids love the chances to try out new equipment, Adam especially!

Sara bundled up warm, too, and just had her little polka dot hat peeking over the top.

But it's when I see a picture like this that I am reminded of how much more than just a job I have.

I absolutely love my job. I feel appreciated and that I bring tremendous value to the leadership team. The owner and my boss, Ryan, who is pictured here has extended a gracious amount of flexibility to my schedule over the years as my family needs have changed and the kids have gotten older. Shannon and I have been part of his business in one way or another since it was just an idea 8 years ago.

More than a boss, Ryan and his family are dear friends. We have been in small group together. He and Shannon have been accountability partners for years, pushing each other to become better husbands, better fathers, and better men. For weeks Ryan and Shannon met in the NICU to pray over Adam and Sara at 6:30am on Thursday mornings.

When Sara's Boston surgery extended past Christmas last year, unexpected Christmas presents for the kids arrived because Ryan's family was thoughtful enough to make phone calls to the hospital.

We have seen each other's kids grow up. We have laughed together, cried together.

This picture is a representation of Ryan's heart for our family, and ours for his. At a time in this world when some things are so uncertain, it feels like a warm blanket to have something that has been consistent for 15 years.

Thanksgiving in Wisconsin

Holidays at my relatives usually mean family, good food, and a crowded house.

My family--they are adorable! They snuggled with Shannon for the Macey's Thanksgiving Day Parade viewing.

My kids could sit with my mom for hours and listen to her reading books.

Even the youngest attendee was excited! Lincoln and my aunt Robyn.

Good food.

Appetizers...or all day sneak snacking.

 Beth looks ready to eat!

Apple pie and pumpkin with homemade whipping cream...carrot cake, too. A rice krispy treat, and the little s'more things were the bomb. Wonder where that pumpkin fudge went that was so good...

A house full...2, 3, 5, 8, 12, 17, 23 (a light year!)

Nothing like an afternoon sled to work off your meal!

After sledding we made homemade pretzels.

And then headed to the movie to see Frozen.

Waffles for breakfast the next morning with the cousins before our home theatre viewing of Planes!

Children's Museum Outing

We surprised the kids this afternoon with a 45 minute road trip to the Children's Museum in Bloomington, IL. They had been there before but it was 2 years ago so they didn't remember. It is so much fun to me to just sit and watch them discover things.

Sara loves to look at herself in a mirror, mess with her hair, dance, etc. But this mirror really threw her off!

The boys are all about the cars. I think they could have played in that area for an hour!

They both really enjoyed the water area.

Then it was off to make pizzas! Sara had so much joy on her face as she was "waiting" on us...pouring us drinks and serving our pizza slices. Shannon thought she put onions on top of his pizza but she swore it was canadian bacon!

After spending a little time in the doctor area, we moved on to the giant building blocks.

They absolutely loved the 2nd floor--over half of it was farm-centered.

This cow milking station cracked me up. Adam kept waiting for the container to fill up with milk that was pumping from the cows.

Sara kept running back and forth with a bucket of "feed"...little green balls that you could gather from various stations and put them into vaccuum tubes to get suctioned to another part of the farm.

Adam just kept running from one station to the next. I really think they both would have run themselves until they passed out!

I thought they would be more interested in the vaccuum tubes that spit out rags and balls.

Instead I think Shannon and I enjoyed it more. Of course the "big boy" had to say "I wonder if I can get it stuck?!"

Sara was 2-fisting the pinwheels, deep in concentration.

After we enjoyed some calzones, we headed for home. Totally worn out, heads were bobbing quite quickly. 6:15 and they got out of their clothes, into their pajamas, and crawled right into bed.

Preschool Halloween festivities

On Thursday the kids got to wear their costumes to Preschool. Parents were invited back for a little parade and snack time.

Here comes Adam and Sara's class with their teacher in the lead, Mrs. Ohlman.

All the adults loved their costumes. All the kids said "Who?" I think they were the only ones that were made. It seems like when I was younger, everyone made costumes. It must be a sign of how busy lives are now and what a faster pace life is.

I think it's great that Adam and Sara don't feel like they always have to sit next to each other. However, in this case, Adam missed out on being able to eat Sara's pudding that she didn't like and the fruit snacks that were left over. I laughed with another mom as we watched the things being thrown away. At home we eat what's left and we weren't even offered a spoon!

Here is Adam and Sara's class, minus one student.

Then I got to go to their classroom and see some of the projects they have been working on.

Adam's is in the upper left and Sara's at the bottom of the same row.