Tuesday, October 27, 2009

New food for today

Pumpkin! Tis the season. I looked through my cabinet and found a can of pumpkin. Why not? It's 100% pumpkin with no additives. Mix it with a little breast milk and you can slap it in a jar and charge 20 times the price! They loved it with no hesitation. I took my aunt Robyn's suggestion and made balls with a cookie scoop and froze it on a cookie sheet to store in a ziploc bag. From my estimation, I got 9 jars of baby food ($.50 each) out of 1 can of pumpkin (less than $1.00). Now that's being budget smart!

So far they like squash, sweet potatoes, peaches, pears, and pumpkin!

Sunday, October 25, 2009

RSV season

The pediatrician’s office called on Friday and told me the NICU sent them a letter that indicated they wanted the twins to receive Synagis this winter. Synagis was approved by the FDA in 1998 to help prevent serious complications from RSV infection in high-risk babies. Most people have not heard of RSV, respiratory syncytial virus, even though about 67% of babies are infected with the virus, which causes a lung infection, before their first birthday and virtually all children will have been infected by their second birthday. Dr. Neese had previously told me he didn’t think the kids would need it because they were too healthy but has now changed his mind upon the advisement of the NICU and the amount of illness that is circulating. It still needs to be approved by the insurance company and we should hear back within a week or so. Approval is key as each shot costs approximately $2,400! A home health nurse will come to our house to weigh the babies and administer the proper dose of a shot once a month for the next 5 months.

For full-term babies, RSV typically is not any worse than a common cold, but for preemies, the virus can be quite different. Babies born earlier than 36 weeks are at the highest risk for serious complications like pneumonia, bronchiolitis, and other sometimes fatal complications. In addition, RSV is thought to play a major role in the development of childhood asthma. During RSV season up to 125,000 infants and young children will be admitted to the hospital as a result of RSV infection. Sadly, about 2% of these children may die from complications associated with it. Our babies were born premature (28 weeks of gestation, which is 12 weeks early), are multiples, and had low birth weights; these are among the highest risk factors for contracting RSV and developing serious complications.

Preventing the spread of RSV is very difficult. Thus, we must be vigilant about keeping our children safe during RSV season (October through April). The virus is spread through physical contact such as shaking hands with an infected person, in the air via a cough or sneeze, or by touching an infected object. The virus can live as long as 6 hours on hands and up to 12 hours on surfaces such as doorknobs, telephones, faucet handles, counters, used tissues, or burp cloths, and it spreads very easily.

You may ask, “Can’t they fight it off and build up their immune system? Kids need to get sick, right?” The simple answer is NO. Since our babies were pre-term, they did not acquire the necessary immunities to fight off infection. If they contract RSV, they could be hospitalized.

We’ll be asking our visitors to follow a few guidelines to help prevent the babies from contracting RSV or any other illness. We ask that all visitors do the following:

  1. Please refrain from coming over if you are currently sick and have not been symptom-free for at least 5 days, if you live with someone who is sick, or have been in close contact with someone who is sick.
  2. When you arrive, please wash your hands with warm water and soap, and use hand-sanitizer as needed before touching the babies.
  3. Please, if it is possible, get a flu shot.
    If you smoke, we ask that you change your clothing and do not smoke prior to visiting, as a preemie’s lungs are very sensitive to smoke. Most RSV sites recommend against passive smoke exposure.
  4. If you are parents to a baby or toddler, please refrain from bringing them to our house during RSV season.

Unfortunately we will not be attending many events during RSV season. Our goal is to make it through this and the next RSV seasons without the twins contracting RSV or any other serious illness. Their lungs are still very fragile until they are 2-years-old. This website offers a great visual comparison of a preemie’s lungs compared to the lungs of a full-term baby: http://www.preemiecare.org/LungsTrees03-4.pdf

Thanks for your help in continuing to keep our Wonder Twins healthy!

Friday, October 23, 2009

Mmmmmm...pie!

This video speaks for itself. All I can say is 'That's my boy!'


Adam's rolling

Video of Adam doing his favorite thing right now...



Even after bath time...he can't help it - it's so much fun!



And in the middle of the night - keep in mind the room was pitch black when I took this picture. Notice his legs through the crib slats. I could get a bumper pad but he would lift his legs over it. I could put them in separate cribs but that won't solve my problem and he doesn't wake Sara up!


What a nice day for a walk

Wednesday seemed like it could be one of the last nice days of the fall so why not celebrate with a walk? The kids didn't seem too thrilled and they were actually awake the whole time. I think Adam was a little frustrated I made him put on a jacket but short sleeves was a little too chilly and I knew he would kick a blanket off. I hope they enjoy the colors of fall as much as I do when they get older!

Back from our trip and settled in

Took me a few days to get situated after returning home from being gone a week! We were all excited to be together as a family again and enjoy our own beds. The kids did great on the trip 98% of the time! They napped the whole way in the car. We stayed in a fantastic hotel. They went for their first bus ride with Aunt Robyn as they caught the free shuttle to the Mall of America. Fortunately, they were a piece of cake during shopping so everyone enjoyed their day. Of course the kids had to get a little something - cute new stocking hats and soft little toys that krinkle - a pink bunny for Sara and a yellow duck for Adam. My cousin Emily and I enjoyed some time away during the Women of Faith conference and bought our discounted tickets for next year at Milwaukee. Saturday night was a trip, literally, as we were wandering around driving and trying to decide where to eat. They wanted to find this Italian place they had eaten at before but weren't sure where it was. After more than an hour, we arrived, only to hear Emily say the GPS reported we had driven 8 miles! Figures for a van-ful of women! Sunday morning we stopped at Yum! Bakery to buy some fantastic goodies. Seriously some of the best baked goods I've had in my life. And if you know me, you know I have sampled quite my share! Monday was a quiet day back in Lake Geneva. Tuesday we got packed up after a crying fit (due to a much needed nap) and I had to unload Sara from her car seat twice because she kept pooping! We attended my cousin Sheryl's mother's visitation/funeral and then headed home. The kids were very well behaved until right in the middle of the woman pastor reading scripture in quite the monotone - Adam yawned the loudest, most dramatic yawn I've ever heard come out of him! Apparently that is what he thought. Emily and I tried to hide our laughter. What can you do when you have kids?

So what can happen in a week?

Sara is her usual, chatty self - smiles and giggles and loves interacting with you. What a messy eater she is as she has now tried squash, sweet potatoes, and peaches. She likes them all but definitely LOVES peaches and says 'Mmmm' after every bite. It is a competition with her thumb to get the spoon in her mouth. She is growing stronger with sitting up and trying to stand at times. Usually it is on her terms and when she feels like it, though. The past few days she is trying to roll and makes it half way. She has reached the next developmental step Adam's physical therapist told us to watch for - reaching for things over/above her while laying on her back.

Adam continues to be a strong little boy. He mastered rolling onto his tummy while we were gone and shows off his talent at every chance he gets. If he is wide awake, he is pleased with himself and cranes his neck up like a turtle to play. But if he is sleeping, it just makes him frustrated. He hasn't figured out yet how to get himself out of the situation he put himself in. And I haven't figured out how to position him so he doesn't roll in the middle of the night and wake himself up. This morning we were up from 3:30-5.

Thursday, October 15, 2009

Road trip

We are taking our gig on the road. I packed up the kids and half the house to travel to Wisconsin yesterday. Staying with my aunt Robyn for a few days and then Robyn and my cousin Emily are headed to Minneapolis for the weekend for the Women of Faith Conference. Robyn is tagging along as the Super Nanny!

Sara did seem a little disoriented after waking from her nap yesterday afternoon and realizing 'I don't think we're in Illinois any more, mom!'

Dinner was a bit of a challenge trying to feed them both in their Bumbo chairs. They kept leaning to one side, sticking their bib in their mouth. What a mess! But they both tried squash for the first time and that was a huge success! No hesitation from either of them.

Apparently the first day of a road trip is exhausting. Adam had jammies on and was asleep at 7. Sara by 7:30. A full hour earlier than usual. How did that go you ask? Fine except when Adam woke at 1:30. I nursed him for 10 minutes and he fell back asleep. Perfect. Until I laid him back in the Pack n Play and his eyes popped open and he said "Ooooohhh!" Crap! I spent the next hour plus holding him, rocking him, watching him look at things in the room, and listening to him talk to me. Finally he fell asleep at 3. Laid him back in the Pack n Play and he flailed around and his eyes popped open. I think some of it may have been that he isn't used to cramped quarters. He usually gets a full crip to turn upside down and get positioned next to Sara. So I laid him in the bed next to me and surrounded us with pillows.

Wonder what tonight will bring!