Tuesday, June 1, 2010

Good to have you home, my boy

June 1. Adam's discharge date from the NICU one year ago. Finally, both my babies were home together! On the exact day that my aunt predicted. But I don't think he would have made that if Shannon and I hadn't gone and "rescued" him. The only reason he was still in the hospital at that time was because he wasn't consistently taking his full feedings. One nurse would have good luck. Another would say he just didn't feel like eating. Yep, that was Adam. Why work hard to bust out when cute nurses are doing everything for you? It seems my boy was smart from a very early age! So Friday morning, May 29, 2009 we woke up and said "let's be there for every feeding." No more discussion was needed - we were both on the same page. We felt like establishing consistency in his feedings would help push him over the hump and get him home. This meant coordinating child care for Sara who was already home, making a detailed schedule of who would take which shift at home and which shift at the hospital, planning time to eat and sleep, and staying on my pump schedule. They were still on a 3hr feeding schedule so we decided one person would stay at the hospital for 2 feedings and then the other person would rotate in. Shannon slept in the truck in the OSF parking deck for a bit in the middle of the night. One night our friend, Dawn, came for Sara's midnight feeding so one of us could sleep while the other was with Adam. She said it was so odd to come into a quiet house, wake a baby, change her, feed her, put her back to sleep, and leave - like Sara was taking care of herself! All of our efforts paid off and Adam was discharged on Monday, June 1, 2009.

We had quite the roller coaster ride in the hospital with him. Heart issues from his PIC line migrating too close to his heart and setting off a rapid heart beat over 250 beats per minute. 2 blood transfusions. Numerous feeding issues that led to various tests and more x-rays than we can count. Premature development of his eyes. And his Level 3 IVH brain bleed. Typically, 28 week preemies have a 10% chance of getting cerebral palsy. His IVH increased that to 25%. All of that roller coaster riding and no one would ever look at him and know. The slight tone he still has in his legs is undetectable to the untrained eye. He has gone from Mr. Inactive in the womb to Mr. Busy all the time. 6 teeth, smiling all the time, and on the verge of walking. It's so funny to watch him play, always trying to figure something out. He'll wander off to do something, then mosy on back for a little snuggle before heading off to play again. Just last night I went in the nursery before bed and there he was - face down, thumb in, knees tucked to his chest, and his little butt in the air.

Adam, it has been quite a year having you at home. You run me ragged some days but I wouldn't trade it. You are unique from your sister and I am so honored to have a front row seat to watch you grow. I will be your biggest fan! Just like when you were born, don't let a challenge stand in your way! I love you, my boy. Momma's little monkey.

Adam on his first day home from the NICU...

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