I guess Adam and Sara decided they wanted a new studio apartment for their birthday this week. They were moved to the 1st floor Neonatal Intermediate Care Unit Wednesday night. And last night we celebrated their birthdays as a family by kangarooing together.
The new room is quite spacious and sectioned off by curtains when needed. They even have 3 large windows that bring in nice sunlight during the day for them to bask in the rays. The nurse to baby ratio is still 3:1 so the level of care remains but in a quieter environment. They will continue to see the same doctors. We are adjusting our visit schedule so we can still hear the daily doctor update firsthand - we will visit early afternoon after lunch and in the evening after dinner and shift change. Be sure to call us if you would like to visit as they are in a secure pediatric area and you would need to be escorted by us.
Adam has been making slow, steady progress in working back up his feeding schedule. His IV nutrients were stopped yesterday so he has transitioned back to total breast milk with fortifier for extra calories. The IV was removed last night. He still hasn't had a bowel movement in a few days as his body is working to adjust to the interruption of food.
Sara enjoyed a few days off the canula. However, she had 3 breathing episodes that were all self-correcting. The doctor indicated if she had any more than that or needed assistance, she would go back on the oxygen and we would try again in a few days. We received a call this morning that they did resume oxygen last night at 1am. This is typical and just means she needs a little more time to develop. Her feedings are going well.
You know, I just have to keep everything in perspective. Yesterday we had a conversation with a mom who was taking her baby home that was born with a chromosome birth defect and was expected to die soon. How do you even process that? Another mom in the evening talked about how her daughter was going home this weekend and she went on and off oxygen 6-7 times during her stay. The twins have had such minor bumps in progress along the road that they really can't be considered set backs. Every time we go, we hear comments from nurses about how they are amazed at their progress, how well they are doing for their size, they haven't experienced a "typical" journey for 28 week preemies. When I am overwhelmed by prioritizing things to get done or exhausted at 3am while listening to the sound of the breast pump, it is those comments I keep in mind. And they give me energy to get up and walk through the schedule all over again.
And that is what we will do, whether it is for another 4 weeks, 6 weeks, or 8 weeks.